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Author: Subject: Juanitas Fight for Life.
Sallysouth
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[*] posted on 6-21-2012 at 10:15 PM
Juanitas Fight for Life.


It is with a heavy heart that I am writing to my fellow Nomads this recent news.She called me two days ago and told me she was coming home.Her Leukemia has come back. Her girls don't know about this yet but will tomorrow.I really don't know if I can keep it together when she tells them the "news".She wants to make whats left of her time as healthy and happy as possible and wants to get information on any clinics, N. San Diego or TJ, on down to Ensenada, that may help prolong her life.The docs gave her two months but she is very stong willed and is not giving in yet.She knows her time is limited but she wants to do/learn some things she never made time for before.She also wants to go back to Baja to see and feel her favorite beaches before her time is up, so to speak.Her whole family is rallying around to help and support her in every wa.It has been pretty tough for me to hide this from the girls, but they have been in school so that has been my time time for letting the tears flow. Today was the last day of school.I am so thankful to my husband for the support he has given the girls and me thru this time.We have been counting pennies to feed the clan!If any Nomad has info on clinics or rehab/doctors that might fit her needs, I would appreciate any suggestions.This post has not been easy to write but I know I have such huge support here that I felt I really needed toletyou know. I'll post again when I can, but I will be spending as much time as I can with her.Thank you Nomads, again, Abrazos, Sally



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[*] posted on 6-21-2012 at 10:22 PM


All my heart and strength are yours to draw upon.
Blessings and fullness of being are sent.
In spirit and love to all of you, precious friends.
Godspeed.
Lisa Maria/Mulegena




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[*] posted on 6-21-2012 at 10:26 PM


All the best. I don't know you. If I could help fight, I would. All the best to you and Juanita.



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Ken Bondy
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[*] posted on 6-21-2012 at 10:28 PM


I am heartbroken to read this Sally. I don't have any great words of wisdom. We live in the south part of Ventura County, if there is ANYTHING we can do, please ask. Abrazos, ++Ken++



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Gypsy Jan
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[*] posted on 6-21-2012 at 10:32 PM
I Sincerely Hope


That you and Juanita find joy and happiness in your moments.

Godspeed to you both.

GJ




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Skipjack Joe
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[*] posted on 6-21-2012 at 10:41 PM


I'm very sad to hear this, Sally. Although I don't know you or your daughter I feel as though I've been part of your struggles through these threads. Having never been in Juanita's position I can't find any advice to offer.

I'm just sorry, is all.
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Ken Cooke
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[*] posted on 6-21-2012 at 10:45 PM


Exactly 5 yrs. ago, I lost my good friend to Leukemia. His last wish was to return to the Copper Canyon with a well-equipped 4WD group - I assembled a good-sized group, and he had the experiences and adventure he had been craving.

Copper Canyon Part 1
Copper Canyon Park 2

When our friends go through these unfortunate events, I feel it is so important to support these last wishes the best we can.

I hope you are able to take your good friend back to the beach in Baja. Be strong, I know it is tough.

Ken




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David K
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[*] posted on 6-21-2012 at 11:40 PM


I am so sorry Sally... I hope that she is able to do what she wishes and that some kind of miracle will allow her to be here longer. Just show her all the love that family can give to each other, at this time.



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[*] posted on 6-22-2012 at 12:15 AM


Quote:
Originally posted by David K
I am so sorry Sally... I hope that she is able to do what she wishes and that some kind of miracle will allow her to be here longer. Just show her all the love that family can give to each other, at this time.


David, I could not have said it better than what you just stated. Sally, our positive thoughts are with you and your daughter.




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[*] posted on 6-22-2012 at 06:40 AM


the end comes fast for us all. i'm sure she is with the people who give her happiness and comfort. we all should be so lucky! give her a hug for us all!



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[*] posted on 6-22-2012 at 08:15 AM


Querida Sally, I opened this thread earlier, closed it, reopened it, closed it again, and went for a good long walk in the woods.
I thought alot about You and your girls, me and mine, we are so close in age as are our daughters. You are truly facing what I think any parent would rather die than have to go thru.
I am trying so hard to come up with the right thing to say; I just can't think of what to say, your tears are joined by my tears, I wish the news would have been the opposite, but it is what it is.
I do believe that you can create a life time of wonderful memories over the next few months, nothing makes life so delicious as the awareness of how brief our time here truly is.
When I reflect on the last months with my Dad, they were the best times, we ever shared. I am so grateful that I got to spend that time at his side, I learned alot about life in the process of helping him pass out of his.
I have no fear of life or being dead, but the dying part of it scares the beezus out of me.
May you embrace every moment good and bad, all my Love to You and Yours, Sara
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[*] posted on 6-22-2012 at 08:16 AM


It sounds like she is making the best decision-enjoying what time she has left.
I am sorry for your suffering.




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Skipjack Joe
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[*] posted on 6-22-2012 at 08:36 AM


Very often there is information that a parent holds back from a child until "they are ready for it" and the time never comes. Now is the time to clean house and disclose everything.

I went through a period like that with dad who seemed to really enjoy talking about his life and events before I appeared on the scene. I had never suspected he was such a Don Juan.

Having said that I wouldn't say things that would distress Juanita.

I can see how walking on an old favorite beach would give her pleasure but I wouldn't let her do it on her own. At this point in time I would think it be important that someone close to her be around her all the time. You can rotate responsibilities.

Dig up the old family albums and go through the pictures one by one. Each one will remind both of you of all that happened at the time. You'll get over the initial tears and it will give her a sense of how full her life has been.

[Edited on 6-22-2012 by Skipjack Joe]
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David K
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[*] posted on 6-22-2012 at 08:43 AM


A video or at least voice recording of her talking to her children, made now, so she can tell them about her love for them, how they made her life so great, what she wants for them as they grow up.... That would be a wonderful and very enriching thing for them to have of their mother... Something they can go to for the rest of their lives.



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[*] posted on 6-22-2012 at 08:58 AM


Oh Sally, it is with a heavy heart I digest your news and as my amiga Eli expressed, our tears are joined with yours...it has been a long painful journey for you all so let us hope that this next chapter will be a graceful one full of love and adventure.



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[*] posted on 6-22-2012 at 08:59 AM


So very sorry to read this, Sally. You and yours have our thoughts and prayers.



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BajaBlanca
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[*] posted on 6-22-2012 at 09:33 AM


so sorry to hear this ... may her last days be truly blessed by family and good friends. and may the Baja beaches ease her sufferring. my prayers go out to you.




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[*] posted on 6-22-2012 at 10:46 AM


Quote:
Originally posted by capt. mike
So very sorry to read this, Sally. You and yours have our thoughts and prayers.


X2 you have our best wishes.
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vgabndo
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[*] posted on 6-22-2012 at 03:22 PM


I'm so sorry it has come to this. When I cry for strangers sometimes I think I'm letting go of some of my own fear. Living from CT scan to CT scan is not the way I planned it. My heart is with you, cyber-friend. You're on a rough road.

I hope the Nomads will find a way to chip in and make it easier for you to fill-in Juanita's bucket list. Money and best wishes, we have. Answers? Wise words? I'm so sorry it has come to this.

Bless you. Perry




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PEACE, LOVE AND FISH TACOS
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[*] posted on 6-22-2012 at 05:07 PM


Sally, I am so sorry that the transplant didn't work, and that you, the children and Juanita herself have to face this. Several months ago I confided in you what I am going through. The reason I mention it here is to relate what is perhaps a positive story:

I attend a wonderful Cancer Support group at our hospital. It is moderated by an MD who no longer wishes to practice. He is very critical of our Medical System and is now a writer who is contributing a lot of progressive information.

Anyway, there is a man in our group who comes with his wife. She is, of course, the primary caregiver. The toll on caregivers is tougher, it seems, than it is on the patient themselves. This man has Leukemia and was given prognosis of one to two months. He was referred to Hospice. Well, they keep kicking him out because he has outlived their six months limit three times now. He has to reapply each time to get back into the program.

His main complaint was that he was tired all the time and slept a lot. Now he is getting less tired, has put meat on his bones, his face has filled out and his color is good. He has a great sense of humor and is enjoying the miracle of Life. This guy is 78.

A person's mind will tell them when it is time, and then they will give up. I don't want to appear Pollyannish but these things do happen sometimes with people who are not ready to give up. I sincerely hope that Juanita and family can be one of those who just won't accept the prognosis. She is a proven fighter!!!:)

My heart goes out to you all.

Amor y Abrazos,
Tony




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