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Sallysouth
Super Nomad
Posts: 1835
Registered: 10-9-2003
Location: Capo Beach
Member Is Offline
Mood: missing Baja...
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Thanks Paulina.I know you are full of tons of that good stuff along with Nena, Diana, DENNIS, Skipjack, IslandB, and many more.Yes it is a BIG
commitment to sign up for this.And one has to be in tip top health to boot.Thats a tough one in our world today.
Happiness is just a Baja memory away...
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Islandbuilder
Senior Nomad
Posts: 555
Registered: 11-9-2011
Location: nob
Member Is Offline
Mood: bewildered
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Sally, so sorry that the struggle is continuing to be so damn hard! You and your family remain in my thoughts and prayers. No one ever say that
Juanita gave up, or that her mom didn't support her in every possible way. You are both heros. I hope you can get something other than cried out,
exhausted and collapsed sleep.
Blessings to you both.
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Mulegena
Super Nomad
Posts: 2412
Registered: 11-7-2006
Member Is Offline
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Testing to be a bone marrow donor candidate
I could research this myself on-line, but I figure the Board has the answer.
How do we go about getting tested?
What's involved?
What are we looking at committment-wise?
"Raise your words, not your voice. It's rain that grows flowers, not thunder." ~Rumi
"It's the mark of an educated mind to be able to entertain a thought without accepting it." ~ Aristotle
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DianaT
Select Nomad
Posts: 10020
Registered: 12-17-2004
Member Is Offline
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| Quote: | Originally posted by Mulegena
I could research this myself on-line, but I figure the Board has the answer.
How do we go about getting tested?
What's involved?
What are we looking at committment-wise? |
Maria, check this out
http://marrow.org/Join/FAQs_about_Joining.aspx
I know I don't meet the age requirement.
[Edited on 3-2-2012 by DianaT]
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Sallysouth
Super Nomad
Posts: 1835
Registered: 10-9-2003
Location: Capo Beach
Member Is Offline
Mood: missing Baja...
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Thank you Diana and Mulegena.There is an age requirement.Both of her sisters are not a match. Makes one wonder...
Happiness is just a Baja memory away...
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Diver
Ultra Nomad
Posts: 4729
Registered: 11-15-2004
Member Is Offline
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Sally,
Have you posted her blood type etc ?
Please post any info you have on the match.
Give a Nomad a chance to help.
I'm old but still young enough to donate.
Best hopes and wishes !!
.
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angels4
Nomad
Posts: 124
Registered: 9-12-2011
Member Is Offline
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Sally,
As a mother of two precious boys who mean the world to me, I can understand what you are going through. You are a strong woman and I am sure your
daughter has inherited your strong spirit and will put up a good fight. I will pray every single day for your daughter until she is home with her
family. God bless you and Juanita. Many prayers will be heading her way.
-Laura
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Mulegena
Super Nomad
Posts: 2412
Registered: 11-7-2006
Member Is Offline
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My Facebook Status Update
" Here's the deal, Facebook Friends.
Its hit close to home and is real.
I've a friend whose daughter is fighting leukemia. She needs a bone marrow transplant and has no matches! Here's the link to the bone marrow registry.
Please consider joining up and being tested as a possible donor-- for this young woman or someone else. Its all about the love of one another at the
end of the day... thanks, Friends.
http://marrow.org/ "
"Raise your words, not your voice. It's rain that grows flowers, not thunder." ~Rumi
"It's the mark of an educated mind to be able to entertain a thought without accepting it." ~ Aristotle
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David K
Honored Nomad
Posts: 65278
Registered: 8-30-2002
Location: San Diego County
Member Is Offline
Mood: Have Baja Fever
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| Quote: | Originally posted by Sallysouth
The fight continues.She has an infection, of the UTI, a fever, and is not producing her white cells.She is almost in a coma, can not stay awake, and
in a lot of pain.Her Sister went to see her today and was told that of the four possible donor matches for her(bone marrow) in the US, not one has
replied to letters or calls made from the doctors or staff at UCI.So next they try to contact donors from Europe.At this point, it is looking very
grim.We keep on hoping and trying to be possitive.Anyone on this board get tested?If so, Bless you, and thank you.I'll let yolu know if there is any
GOOD news...Abrazos Nomads, you are the BEST! Sally. An after thought, can someone post a pic of her on the cover of WON that was a few years
back?(um, DK?) so that all can see the vibrant person she is? Just a thought...
[Edited on 3-2-2012 by Sallysouth] |
Dear Sally, if I had that WON (Western Outdoor News) or if someone else has it and can post the photo or email it to me to post for them, then you
know I would...
I do have the photo of Juanita and her sister at my Viiva Baja #4 party, Feb. 1, 2003:
Maalaea Garcia and Juanita Miller are Msal's beautiful daughters.
Juanita owns El Fuerte Sportfishing in
Puerto Escondido, Baja California Sur. http://www.elfuerte.com/
(caption with photo from 2003, Msal is now sallysouth and El Fuerte Sportfishing is no longer at Puerto Escondido)
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David K
Honored Nomad
Posts: 65278
Registered: 8-30-2002
Location: San Diego County
Member Is Offline
Mood: Have Baja Fever
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| Quote: | Originally posted by Mulegena
" Here's the deal, Facebook Friends.
Its hit close to home and is real.
I've a friend whose daughter is fighting leukemia. She needs a bone marrow transplant and has no matches! Here's the link to the bone marrow registry.
Please consider joining up and being tested as a possible donor-- for this young woman or someone else. Its all about the love of one another at the
end of the day... thanks, Friends.
http://marrow.org/ " |
Excellent... I am adding this to my Facebook page as well.
Here is the flyer from last October showing Juanita and her little children:
[Edited on 3-2-2012 by David K]
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Diver
Ultra Nomad
Posts: 4729
Registered: 11-15-2004
Member Is Offline
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CR-P !!
I am finally too old for something. 
OMG, your girls are BEAUTIFUL !!
.
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Islandbuilder
Senior Nomad
Posts: 555
Registered: 11-9-2011
Location: nob
Member Is Offline
Mood: bewildered
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| Quote: | Originally posted by Mulegena
" Here's the deal, Facebook Friends.
Its hit close to home and is real.
I've a friend whose daughter is fighting leukemia. She needs a bone marrow transplant and has no matches! Here's the link to the bone marrow registry.
Please consider joining up and being tested as a possible donor-- for this young woman or someone else. Its all about the love of one another at the
end of the day... thanks, Friends.
http://marrow.org/ " |
On my FB page as well.
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Sallysouth
Super Nomad
Posts: 1835
Registered: 10-9-2003
Location: Capo Beach
Member Is Offline
Mood: missing Baja...
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Wow Maria, Diver, Islandguy,DK and all!! That is awesome.Just got off the phone w/her and she is in so much pain.So hard watching my girl suffer
so!Yes Diver, my girls are very beautiful! Juanitas sister in the pic next to her, was disgnosed with breast cancer two years ago.Chemo, radiation,
and a double masectomy was the RX.She is still having problems with infections, etc.When it rains, it pours..Back to Nita, still no donor match.Cancer
sucks.....I have the girls with me and we will see her Sunday.Update then..Thank you again Nomads!! Sally
Happiness is just a Baja memory away...
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sd
Nomad
Posts: 487
Registered: 3-19-2008
Member Is Offline
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Hi Sally,
You are all on our minds. Yes, cancer is nasty stuff.
Give Juanita my best wishes and hopefully someday soon she can put this behind her. She and the kids are fortunate to have you to help.
Scot
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CaboMagic
Super Nomad
Posts: 1120
Registered: 4-30-2005
Member Is Offline
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Prayers + Good thoughts sent your way ..
Mulegena inspired - posted on our website on Reel News and Guest Photos pages with hopes it too will attract the 'one' needed ..
*****************************************************
March 3 2012
Amigos and Amigas - altho our business is all about Sportfishing, FOR US, it's all about being alive, being thankful, and paying it forward whenever
possible.
Some of you may know or remember Juanita and Ty Miller - They used to own Juanitas Sportfishing many many many years ago. Beautiful Juanita has
leukemia and needs a bone marrow transplant. Her mom, Sally lives in San Juan Capistrano, California and is taking care of Ty & Juanitas two young
girls ..
Juanita is at Scripps Center in Irvine, CA ...
Anyone can be being tested as a possible donor-- for this young woman or someone else.
Here's the link to the bone marrow registry. http://marrow.org
This photo from the benefit in October which allowed them to get this far.
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Natalie Ann
Ultra Nomad
Posts: 2819
Registered: 8-22-2003
Location: Berkeley
Member Is Offline
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Sad to say, Sally, I am too old and broken to donate for Juanita.
I do pray for a donor to be found soon. Yes, it is a huge commitment. But what greater gift might we have than to give life to another, especially a
young mother.
nena
Be yourself, everyone else is already taken.
.....Oscar Wilde
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Sallysouth
Super Nomad
Posts: 1835
Registered: 10-9-2003
Location: Capo Beach
Member Is Offline
Mood: missing Baja...
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A quick update.She has a lung infection, not pneumonia as of now, and is in the ICU.Please accept my appologies for ranting here.I know how much so
many people care about her and this is kinda like my "pillow place" to go before I check out for the nite.From here on out, I have become very aware
that I must be careful of what I share here.I will share only positive and first hand info .I have some awesome pics of Juanita out of WON that I have
put into my scanner but thats about as far as I can get .Going to see her tommorow, will give a light update in the PM
Happiness is just a Baja memory away...
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generubin
Junior Nomad
Posts: 41
Registered: 12-19-2003
Location: Ventura, CA
Member Is Offline
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Sally,
After spending all of 2010 with my wife with a similar leukemia (she is now well) often in neutrapenic state as I believe Juanita is at this time, I
would like to offer some words of encouragement to you Sally. We had episodes when it felt like there was no hope at all. But little by little each
difficult hurdle was jumped. Time and again, we were distraught, but modern medicine kept her going. Here we are now with my Anne most "likely cured
for life", according to her UCLA docs. We hope for the same for Juanita. In 2010 we witnessed many leukemia patients do well and we are still friends
with several.
We feel your pain as we were there, you are in our thoughts and we hope one day you and Juanita can look back at this experience years from now.
In Anne's case she has 8 siblings, one was a match but Anne ended up not needing a transplant. There is a 1 in 4 chance that any one given sibling is
a match.
To anyone on the fence about being tested for bone marrow compatibility, should you be a match there is no longer any pain in donating marrow. It is
simply slowing giving blood while you watch a movie. There is no more bone marrow "harvesting". There is nothing to fear as there was in years past.
All the best to you Juanita. You'll get through this, I trust this will be so.
Anne and Gene
From Baja to the Sahara to the Arctic and all places in between.
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Sallysouth
Super Nomad
Posts: 1835
Registered: 10-9-2003
Location: Capo Beach
Member Is Offline
Mood: missing Baja...
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Thank you so much for that.I spent some hours with her today and it was pretty tough.I so wish that her recovery will happen. My sweet, strong loving,
giving girl is a fighter.Her white cell counts have started to go up a bit, which raises the hope she may be beating the beast.We have to keep the
faith.And yes she is the neutrapenic state now.She has a mass in her lungs and now they will be doing a biopsy, trach-something on her tommow to see
what it is.The marrow donor is being aggresivly searched.I will know more tommorow.Gene, may I ask how old Anne is?So glad for you both she is doing
well and home.
Happiness is just a Baja memory away...
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Eli
Super Nomad
Posts: 1471
Registered: 8-26-2003
Location: L.B. Baja Sur
Member Is Offline
Mood: Some times Observing, sometimes Oblivious.
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Ah Sally, I wish I had the magical words to bring you some kind of respite from all the pain of this last year. Please know Juanita continues in my
prayers for better tomorrow.
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